DD’s health plunged off a cliff in December last year…it has been failing for years…every time I reread old posts I’m always bemoaning the fact that their health is deteriorating. Well last December they officially accepted that they had moved from moderate to severe ME. They are totally housebound, the 2 doctors appointments they managed in January/ February were brutal and not repeatable. When they needed blood tests this week a nurse from the Practice came out and sorted it, luckily they were very nice. But the PEM has still hit and DD is currently struggling to stay awake for more than a couple of minutes at a time.
Today marks 100 days since they last left the house at all. Not a good milestone. The same week they had their 33rd birthday…DS2 and I went to York to pick up cake which made the day slightly festive. DP obviously ignored the day totally…as did my DF. The last time my parents remembered DD’s birthday was 2019…so 7 years ago. The contempt I feel for them is mountainous…the fact my DM is dead diminishes her part not at all. My DB does remember birthdays …with a card and £20, not exactly putting any effort in! He hasn’t contacted me once since I dropped the rope heaven only now’s how many years ago… DD had been sick a few years but that many…but he found it all too depressing. I checked back and first mentioned DB’s lack of interest in DD’s illness in 2015… no idea how long before the he made the comment but it’s been a long time and he is plenty capable of picking up the rope if he’s bothered. Though to be 100% honest if he did reach out at this point I’d probably grey rock him. Once DF dies I’m very unlikely to have any contact with him at all…and I won’t miss him which is kind of sad because I still miss DB1 even after nearly 40 years.
I do find the lack of any support hard, I rarely get a full nights sleep and I’m on call 24 hours of every day. I do it all willingly and happily, but it would be nice to be seen, for someone to say ‘thanks’. Not DD…they are overwhelmingly grateful which is sooo unnecessary…of course they deserve all the care I can offer!
We had a heatwave over the May Bank Holiday…temperatures over 30C, which really affected DD and made them very poorly. They looked into air con and we found out it was very affordable and so they are getting a unit sorted in their room the middle of this month. The process will be horrific for DD…moving stuff in their room and the exhaustion of needing to move…but, hopefully, worth it in the end. The way temperatures are rising is really terrifying…I remember when the only places in the UK that got over 30C were in the south and usually in August…now its anywhere and looks like it can be anytime. Glad it’s cooler currently.
In better news it looks like DS1 is going to get the keys to his house very soon. Not that this means he’ll be moving out anytime soon…the house needs a massive amount of work but he will be so happy to be able to start the work…he was really lucky and only actually looked at 3 houses and found this one very quickly…it did totally max out his budget but I think he will be very happy in the house once he can move in and then make it over to his ideal place over time. Really pleased, I wasn’t sure he was ever going to be able to move out.
